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CompCure Study & Registry

New complement inhibitors are currently under development, representing a breakthrough for the management and outcome of IC-MPGN and C3G.

Obtaining data from patients with this rare disease group is crucial to learn more about the natural history of the disease, stratifying patients for optimal treatment, and facilitating patient access to ongoing clinical trials.

Current Number of Patients enrolled in the CompCure Registry and Cohort Study

All CompCure centers

Pediatric

99

Adult

20

Total

99

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To increase awareness of CompCure and the registry we are building, Giulia Bassanese prepared a poster for the ESPN conference, which took place in Vilnius in September 2023. If you are interested in learning more about the CompCure registry, and how to enroll, please contact Joanna.sladowska: Joanna.sladowska@med.uni-heidelberg.de
or Giulia giulia.bassanese@med.uni-heidelberg.de.

Doctor Registry form

CompCure Participants Hospitals

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BELGIUM
Leuven:

Pediatric Nephology Leuven
e-mail: brigitte.adams@uzleuven.be

CZECH REPUBLIC

Prague:

Jakub ZiegPediatrická klinika 2.LF a FN Motol

V Úvalu 84; 15006 Praha 5

email: jakub.zieg@fnmotol.cz

CROATIA

Zagreb:

Lovro Lamot, MD, PhDDivision of Pediatric Nephrology, Dyalisis and Transplantation,

Department of Paediatrics, University Hospital Center Zagreb

Kišpatićeva 12, 10000 Zagreb, Croatia

lovro.lamot@kbc-zagreb.hr

FRANCE

Lyon:
Dr Anne Laure Sellier Leclerc
Service de Néphrologie Rhumatologie Dermatologie Pédiatrique
Hospices Civils de Lyon
Hôpital Femme Mère Enfant
59 Boulevard Pinel
69677 Bron cedex
Centre de Référence des Maladies Rénales Rares Néphrogones, filière ORKID
Réseau Européen des Maladies Rénales Rares ERK-Net
Téléphone +33427856129
Secrétariat +33427856128
Fax : +33427856768
e-mail: anne-laure.sellier-leclerc@chu-lyon.fr

Paris:
Laetitia LECLERE
Hôpital Necker - Enfants Malades
Secrétariat de Néphrologie Pédiatrique
149 rue de Sèvres
75015 PARIS
Tél. 01 42 19 26 48
Fax 01 44 49 44 60
Patients can request a first appointment by visiting mon.aphp.fr

GERMANY

Heidelberg:
PhD MD Joanna Sladowska-Kozlowska
Heidelberg University Hospital 
Im Neuenheimer Feld 430 | 69120 Heidelberg
E-Mail: joanna.sladowska@med.uni-heidelberg.de
 
Hannover:
Hannover Medical School Center
Department of Pediatric Nephrology,

Clinic for Pediatric Nephrology, Hepatology and Metabolic Diseases,

Center for Pediatrics and Adolescent Medicine
Clinical research coordinator:
Jaekel.kathrin@mh-hannover.de 

ISRAEL

Petah Tikva:
Dr. Yael Borovitz, MD
Pediatric Nephrologist
Pediatric Nephrology Institute
Schneider Children's Medical Center
Petah Tikva, ISRAEL
Yaelbo2@clalit.org.il

ITALY

Padua:
Enrico Vidal
Pediatric Nephrology Unit
Azienda Ospedale Università Padova
Via Giustiniani, 2
35128 Padova - ITALY
Email: nefrologia.pediatrica@aopd.veneto.it 

Bologna:
Dr. Andrea Pasini
andrea.pasini@aosp.bo.it
SSD of Pediatric Nephrology and Dialysis  - IRCCS Azienda Ospedaliero-Universitaria di Bologna Tel.: +39.051.2144617 Tel./Fax.: +39.051.2144441

Rome:
Marina Vivarelli, MD
U.O.C. Trials
Tel: +39-06-68593081, 06-68597273
Laboratorio Nefrologia
Tel: +39-06-68594402
U.O. Nefrologia 
Tel: +39-06-68592393
Ospedale Pediatrico Bambino Gesù
Piazza S. Onofrio 4
00165 Rome, Italy

LATVIA
Riga:
Dr. Sandra Derkevica
Children's Clinical University Hospital in Riga, Latvia

+37167064405
+37125736352 (mob.)
 sandra.derkevica@bkus.lv

MONTENEGRO

Dr. Danilo Radunovic
Adult Nephrology
danilo.radunovic2@gmail.com

MONTENEGRO

Podgorica:

Dr. Danilo Radunovic
Clinical Center  of Montenegro
(Klinicki Centar Crne Gore) 
Ljubljanska bb
81 000 Podgorica 
Montenegro 

danilo.radunovic2@gmail.com

NETHERLANDS

Amsterdam:
Academic University Medical Center (AUMC)
Emma Children's Hospital
Clinical research coordinator:
s.huijgen@amc.uva.nl

Leiden:

Lotte Weel
LuVaCs Research Manager Lupus, Vasculitis and Complement-mediated Systemic disease Centre of Expertise
E: LuVaCs.projecten@lumc.nl  | l.weel@lumc.nl  
T: (+31) 6 42619158
Nephrology | Internal Medicine
Leiden University Medical Centre (LUMC) | Building 1, Room B2-137
Albinusdreef 1, Postbus 9600 | 2300 RC Leiden

Nijmegen::
Prof Dr Nicole CAJ van de Kar, MD,PhD
Pediatric Nephrologist
Department of Pediatric Nephrology
Radboudumc Amalia Children's Hospital

P.O.Box 9101, 6500 HB Nijmegen,

The Netherlands

Geert Grooteplein Zuid 10, 6525 GA Nijmegen, the Netherlands  


www.radboudumc.nl

POLAND

Gdańsk:
MD,PhD  Magdalena Drożyńska-Duklas
Pediatric Nephrology Dept.
University Hospital of Gdansk
magdalena.drozynska-duklas@gumed.edu.pl

Łódź:
Małgorzata Stańczyk, MD, PhD
Department of Pediatrics, Immunology and Nephrology
Polish Mother's Memorial Hospital Research Institute of Lodz
e-mail: mbstanczyk@gmail.com

PORTUGAL

Porto:

Pediatric Nephrology Unit of Centro Materno-Infantil do Norte

Unidade Local de Saúde de Santo António

Largo da Maternidade Júlio Dinis 45

4050-651 Porto, Portugal

Dr. Anna Teixeira

Dr. Liane Costa

anafteixeira.pediatria@chporto.min-saude.pt

lianecosta.cmin@chporto.min-saude.pt

ROMANIA

Bucharest:

Dr. Anca MarinBuchrest,

Fundeni Clinical Institute, Pediatric Nephorlogy Division

e-mail: anca_marin_me@yahoo.com

SLOVENIA

Ljubljana:

Matjaž Kopač, M.D., D.Sc.
University Medical Centre Ljubljana
Division of Pediatrics, Department of Nephrology
Bohoričeva 20, 1000 Ljubljana
Slovenia, EU

SOUTH KOREA
Seoul:

강희경 姜熙京 Hee Gyung Kang 
소아과학교실 Pediatrics / Professor
Division Chief, Pediatric Nephrology
Director, Kidney Disease Center for Children and Adolescents, 
Seoul National University Children's Hospital 
Seoul National University College of Medicine
101 Daehak-ro, Jongno-Gu, Seoul 03080, Korea 
Tel +82-2-2072-0658
FAX +82-2-743-3455
Email  kanghg@snu.ac.kr / pedneph@snuh.org
https://snucm.elsevierpure.com/en/persons/hee-gyung-kang

SPAIN

Barcelona:

Carla Soto Santoyo

Study Coordinator/Data Entry

Department of Pediatric Nephrology

Vall d'Hebron Research Institute (VHIR)T:  

0034 93 489 30 82  

Nefrología Pediátrica, Planta 2 Edificio Maternoinfantil Hospital

Vall D'HebronPasseig de la Vall d’Hebron, 119-129 | 08035 Barcelona

carla.soto@vhir.org

TURKEY
Izmir:
Assoc. Prof. İpek KAPLAN BULUT, MD
Ege University, Medical Faculty,
Department of Pediatrics
Division of Pediatric Nephrology
35100, İzmir - Türkiye

Adana:
Dr Bahriye Atmis
Cukurova University,

Department of Pediatric Nephrology

Adana
e-mail: batmis@cu.edu.tr

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